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Did you save your baby's cord blood? Why or why not.

post #1 of 24
2/4/06 at 2:46pm
Thread Starter 
I'm trying to decide if I should save the cord blood of our dd. We didn't save Christian's because we found out you can get the same benefits of cord blood by bone marrow transplants. However, I didn't know it was more expensive and was more difficult to find a match.

So did you save your baby's cord blood? Why or why not.
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post #2 of 24
2/4/06 at 2:57pm
Nope. We weren't in a financial position to do so at the time he was born.
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post #3 of 24
2/4/06 at 3:01pm
Nope. Didn't have the $$$.
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post #4 of 24
2/4/06 at 3:32pm
No we didn't have the money. I did ask about donating it but my hospital doesn't offer that option.
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post #5 of 24
2/4/06 at 3:35pm
I dontated Zachary's cord blood because it wasn't an option financially for me to have it stored.
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post #6 of 24
2/4/06 at 3:35pm
No, we didn't have the money.
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post #7 of 24
2/4/06 at 4:15pm
No...I didn't know much about it...I didn't know where it should go or what to do with it. Money was an issue. I didn't even think about asking if I could donate it.
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post #8 of 24
2/4/06 at 4:19pm
No. We didn't have the money at that time. And we couldn't donate it because of the complications with the knot in the cord, and all that.
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post #9 of 24
2/4/06 at 4:51pm
I Would Have Liked To But No ...no $$$$$$$$
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post #10 of 24
2/4/06 at 5:15pm
Nope didn't save any of the three as it was a question of money.
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post #11 of 24
2/4/06 at 5:32pm
We didn't have the money. I really wanted to donate it for research, because stem cell research looks to be the best hope for a cure for MS, but that option was not available.
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post #12 of 24
2/4/06 at 5:44pm
I found out that even collection for donation is so expensive of a process that they only offer it at certain major hospitals Lenora. They didn't do it at the hospital I had Haley at but I had Zach at Duke. I was unsure about it at first but the main thing that swayed me is the packet they give you. It contained 3 different post cards. One was for filing a change of address so they could notify you if any abnormalities were found in your cord blood, one was so you could have them destroy your sample at any time you change your mind, and one was to inform them that your cord blood was needed by your child so they could return it to you if it still existed.
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post #13 of 24
2/5/06 at 3:36pm
We are definitly considering storing it. The MS reason is the biggest reason. We considered it when we found out Tom had MS and now that Mike has it as well we'll definitly try to save it. If we can't come up with the money then I'd like to donate it. I know Madison has a stem cell bank and that there are a few hospitals in Wisconsin that now allow donation.

I've heard you only have to save from one child too. It is expensive but I think that the possibility that it could cure Mike would make me do just about anything to come up with the money. Some banks allow you to pay it yearly and some want all the money up front.
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post #14 of 24
2/5/06 at 8:20pm
With rhyne's I didn't know you could donate it, with braylen I did donate it and with this one I will donate it too. I wouldn't keep it for us because we don't have the money to store it forever. I would only save it if I already had a sick child who could use it.
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post #15 of 24
2/5/06 at 9:01pm
Thread Starter 
For those who saved or donated it how much was it?
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post #16 of 24
2/5/06 at 9:49pm
i wanted to, but it isn't offered in our area yet
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post #17 of 24
2/5/06 at 9:52pm
Donating is free
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post #18 of 24
2/6/06 at 12:36am
Well one site i looked atCord blood

It costs $1975 for the first year because of the harvesting and transporting fees. It's then $125 a year to store it or a lump sum of $1850 for 18 years which saves you some money in the long run.

It is definitly something that if you plan ahead for can be affordable. Good luck deciding.
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post #19 of 24
2/6/06 at 12:34pm
We haven't done it either, same reason, $$.
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post #20 of 24
2/7/06 at 9:10pm
I'd like to save mine, but I know $$$ would be a big issue for us. If I can donate it though, I will go with that option, maybe help someone else out along the way.
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post #21 of 24
2/7/06 at 9:16pm
We briefly talked about it and I even talked to the folks at Viacord more than once. We had just about decided to do it with Kate - when WAM she decided to be born 3.5 weeks early so we didnt have time to get the kit for retrieval.

Kev and my family have a variety of illnesses that cold someday be "cured" with the useages or research on cord blood - so it is definitly something I will look into next time.
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post #22 of 24
2/7/06 at 9:34pm
As I had my children in the 'dark ages' (20 and 14 years ago) cord blood retrieval was not an option, I did ask for cord blood to be drawn for genetic testic to see if the boys were identical or fraternal twins but they only blood typed it and said "they be either", terribly helpful

And like MS the hope for a cure for diabetes is strongest with stem cell research

I was not a 'full time' diabetic in those days (just gestationally diabetic with the twins) but if the option had been available I would have donated in a second, I was already a blood donor and would certainly have donated the much more valuable cord blood - giving blood saves lives 1 life at a time, cord blood could concievably help save millions from a life of misery, suffering, helplessness and hopelessness.
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post #23 of 24
5/13/11 at 1:32pm

Donating the cord blood is free, however, if you are to need it in the future it isn't guaranteed that you will be able to retrieve them.  Also, it would cost you $25,000 to obtain the stem cells from a public bank versus $2,000 from a private one.

 

I utilized a gift registry program to help offset our costs, which was around $2,000 from PacifiCord. It was also broken down into monthly payments as well. They offer other discounts as well, you can check to see if you qualify.

 

We have peace of mind knowing that so far we've taken all the steps we can in securing a healthy future for our baby boy.

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post #24 of 24
5/13/11 at 10:51pm

I felt really badly they incinerated my first baby's cord, because there was no research program available even though she was born at a large university hospital.  When the second was born, they asked me if they could have it and the placenta for research.  Of course, I said yes.  I could never afford to save and store it.  Plus if it wasn't used (which I suspected it wouldn't be), it would be wasted at great expense to me.  I felt like I could really do something to help others and it would have just been burned otherwise.

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