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How do I do this?

post #1 of 24
Thread Starter 
I'll spare y'all all the details, but it's become apparent that it's time for my mom to go to a hospice. I have medical power of attorney, so getting her in there is not an issue. The thing is, my mom is still convinced that she is going to get well, that the chemo will once again put her into remission. Now I have to go to her and tell her that it's time for her to give up her whole life, move into a hospice, and prepare to die. How do I do that? It's not so much the words, but how do I DO that? I called my sister, and she just doesn't get it. You would think, I would think, she would say she would come home and tell my mom with me, but she didn't say that. She said she would call and tell my mom. Hearing this is going to be devastating enough, but on the PHONE? I can't even believe my sister suggested that. I have a call in to my mom's doctor's office, and after I talk to the nurse about options--Hospice vs. home hospice--I'll update y'all. The nurse told me yesterday that it was time to talk to my mom about this, and I think I was just in shock and couldn't think about it. But because of everything that's happened since that phone call, it's become clear that I have to do this.
post #2 of 24
post #3 of 24
post #4 of 24
Tammy you are in my thoughts and prayers. May God give you the words to say and the right time to do it.
post #5 of 24
post #6 of 24
How about contacting the hospice for some insight on how to "break it" to your mom? I know that its not an easy thing to do hon, but its also for the best. We are all here fo ryou
post #7 of 24
Oh honey, I wish I had some advice for you. I wish I knew what to tell you. I cannot imagine what you're going through right now. PM me if you need me. I'm sick today, so I will be here for a little while, but not too long.
post #8 of 24
Tammy, I'm so sorry. I wish I had some advice for you.
post #9 of 24
Tammy I'm so sorry... I would see if the Doctor will help you tell her. You are in my prayers and I'm here if you need me.
post #10 of 24
DH and I both agree that your sister is a bit of a ding-dong for watned to break such news to your mother over the phone. Hopefully, she can give you some support other than that. Is it impractical for her to come to you and tell your mom with you? If so, then she ought to find some way to help.

Talk with the staff at the hospice, the nurses and doctors at your mom's doctor's office - I'm sure they will have some insights to help. to you.
post #11 of 24
I think your sister needs a slap to the head. Where does she live? Get in your dang car, hop on a plane and be responsible and feeling enough to be there in person with Tammy to talk to mom. She sounds so incredibly selfish.

Tammy, I wish I could give you some words of wisdom and comfort. But in this case, there aren't any words I can offer that will help. I can offer you lots of prayers and hugs though.

If you need to talk/vent, you have my numbers!
post #12 of 24
post #13 of 24
Call Hospice or check out their websites. My aunt was a supervisor and RN at the first Hospice for years and then did visiting nurse Hospice care before retiring. They are wonderful places staffed with wonderful people. Your mom will be in good hands.
post #14 of 24
I am sorry Tammy, I have no words of advice. But I hope that you are able to make it through this difficult time.
post #15 of 24
post #16 of 24
Thread Starter 
I have already talked to a very good local Christian hospice. No one--not the director of nursing at the hospice, not the nurse at my mom's doctor's office--has really offered me any guidance in talking to my mom. The director of nursing at the hospice did recommend home hospice for now, but of course, she hasn't seen my mom, etc, and when I talked to the nurse at the oncologist's office today, she seemed to think home hospice might not be the best option. She just said she would talk to the doctor and call me back, which she did call me back, but I missed her call, so I'll call her in the morning.
I just don't want to be premature in putting her in inpatient hospice, but I don't want her to be alone at her house and suffering, either. I have no clue what is best, and so I need both guidance and some idea how to break this to her.
The nurse at the oncologist's office did say that she thought Dr. K would help me talk to my mom about all this.
post #17 of 24
Tammy... my Mom had in home hospice right up until the end. These women were a God send to my family. From what I understand (I couldn't be there) as she got worse they stayed longer hours. Jim's Aunt's hospice workers were round the clock before she died. I wish I could give you a hug right now. I know that Mom's Doctor did help tell her that it was essentially over and that she wasn't going to recover, my Dad just couldn't do it.
post #18 of 24
Thread Starter 
Heather, I have thought about you a lot since things have gotten so bad with my mom. I don't know if I was a member when your mom passed away or if I just visited back then. I do remember reading your posts, though, when she became so, so sick, and I remember how hard it was for you. I am sorry you went through that.
One of my concerns about home hospice is that my mom lives alone, so I don't know how long that option will be practical for her. If my dad were still alive or if she lived with us or someone else, I could see that continuing for a while. This particular hospice operates on donations and is free to patients and their families. I don't know if they offer around the clock care or not, and my mom can't afford to pay for it and neither can we. She is on medicaid, so I also don't know if medicaid will cover any part of at home care if we hired someone to come in.
I have thought about it a lot, and I do think her doctor should share in this task with me. He's the one who is in charge of her healthcare, and they have a great relationship. He tried to tell her that her time was limited a couple of weeks ago, but she didn't listen. I know this because she still says, "When Travis gets older . . ." or "I hope this chemo cures me" or "When I get well . . ." But if he sits her down and tells her to listen, she will. I just hate that she has to go through this. As crazy as she makes me, and as awful as she can be to me, she is still my mom, and you know, Emily just loves her so much. It's going to break her heart when we lose my mom.
post #19 of 24
I'm so sorry Tammy.
post #20 of 24
Just remember I'm here if you need me Tammy. As far as Emily goes... When my Mom was close to the end I went to the library and they actually had a list of books for children that age that talked about death and dying. I can't remember the names right now, but it helped Tessa somewhat when my Mom died that she had an idea about where she was going. another thing that we did was get portraits done one last time (Mom still looked okay, very pale but with makeup not that bad). Than my brother created a Powerpoint presentation with Pics of my Mom from childhood on up till the end. Tessa loves that disk, she watches it whenever she misses Grammy. Sammie does too, but of course she was much younger and at this point I think the only way she remembers Grammy is from our talking about her and that video. I just wish that there was someway I could help you...
post #21 of 24
Thread Starter 
OMGosh, Heather, I am about to bawl! I was okay until I got to the part about the Powerpoint and about Tessa watching it. Thank you so much for the support and suggestions.
Oh, my mom doesn't look like herself at all. I thought she looked bad last year, until I saw a picture of her and Emily from a trip we took just over a year ago. She looked great then compared to now. It's unbelievable how far downhill she has gone.
I was never so thankful for Emily's Christian preschool and for the time we have spent in church as I was when Kyle's dad died this time last year. Emily was very close to him, and so it made it a little easier to explain his death because she knows about Jesus and heaven. She was younger then, so I am sure that helped. I am not sure how she will handle it this time. I think we will go to the library and see if we can find books like the ones you found for Tessa. It will definitely help.
The nurse at my mom's oncologist's office called today and said that her doctor is going to talk to her about hospice when we go in to see him on Wednesday. I am relieved that he is going to help with this, but at the same time it is so sad.
post #22 of 24
It occurs to me that perhaps one of the reasons the hospice director you spoke to recommend home hospice is perhaps it makes the transition for home to a hospice easier for the patient? I should think it would be a smoother move for her, being around a nurse at home for a bit, then just going to the hospice with that nurse, you know? Just a thought - don't know how helpful that is, actually.

I hope your doctor has some insight, and can help you and your mom with this change.
post #23 of 24
Tammy, Hospice (at least the ones here) have requirements for time for admittence. Patients must be terminal with a limited amount of time to live. It's not very long. The typical Hospice stay is 24 hours or less. Amazing, huh? I volunteered at Hospice a few summers when my aunt worked there. Maybe that's why they recomended home care at this point.

A good children's book regarding death is The Fall of Freddie the Leaf. A school psychologist I worked with gave it to me when my daughter died. it really is a nice book and very basic. What I liked is that it leaves room for you to talk to your children about your personal beliefs about Heaven, etc. They carry it at Amazon.
post #24 of 24
Thread Starter 
Here in Georgia, hospice means that the patient has limited life expectancy, and the general rule is the patient has six months or less to live.
Thanks, Abby, for the book recommendation. I am going to see if I can find it tomorrow while we are at the mall.
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